Change approach to diagnosing autism to ease wait times, stress: B.C. doctor

Society says autism spectrum disorder affects one in 66 Canadians aged five to 17

Lindsay Roberts is home-schooling her son, not by choice but because the five-year-old boy would be prone to hitting people, screaming and suddenly running away if he became overstimulated in a classroom without any support.

“My little guy couldn’t start kindergarten because he can’t access support without a diagnosis,” said Roberts, whose son Colton is showing symptoms of autism, the same neurodevelopmental disorder that affects his eight-year-old brother, Travis.

So far, Colton has seen a pediatrician he was referred to by his family doctor but is still waiting to see another specialist who could assess and diagnose his condition.

“The wait list for the pediatrician is a year and then the wait list for the actual assessment with the psychiatrist is another year to 18 months,” said Roberts, who lives in Lake Country.

“The system doesn’t offer support until the child is suspended many times or expelled. Then we can apply for support but that’s really hard on a child’s self-esteem.”

Many parents choose to jump the public queue by getting a private assessment but that’s not possible for those who can’t afford the extra expense, Robertson said, adding funding for autistic children is not available until after a diagnosis and can’t be used to pay for assessments retroactively.

Dr. Lonnie Zwaigenbaum, chair of the Canadian Pediatric Society’s task force on autism spectrum disorders, said the increasing prevalence of the condition calls for general pediatricians and other primary health-care providers to be trained and supported to assess and diagnose it and provide follow-up care.

“There have been pockets of innovation in Canada, really demonstrating that it’s possible to support community pediatricians to do some of that assessment work,” he said, adding that is the case in parts of Ontario, B.C. and, to a lesser extent, in Alberta.

“This really needs to be part of the standard of care in Canada and to not do so contributes to disparities in access and also bottlenecks in the system and likely contributes to lengthy wait lists,” he said.

READ MORE: New study suggests autism overdiagnosed: Canadian expert

The involvement of a team of health-care providers who assess autism is not always necessary and impractical in some areas, Zwaigenbaum added.

The society has released recommendations for a more flexible diagnostic approach that would include general pediatricians, not just doctors and psychiatrists licensed to do so, using a range of resources including screening tools and a checklist for assessments involving conditions that could be associated with autism, such as dental, vision and hearing issues as well as sleep, anxiety and ADHD.

Functional challenges that could require physical, speech-language and educational supports are also considered, as well as questionnaires for parents and teachers, and determining whether families are getting help with any social assistance needs.

Zwaigenbaum said the approach would address concerns about lack of access in rural and remote regions where developmental pediatricians aren’t available when parents become concerned about developmental issues including lack of response when a child’s name is said, delay in language and limited eye contact.

“You may not even have a pediatrician in town so trying to come up with a more flexible diagnostic assessment system that can be applied across the diversity of settings in Canada, I think, was really an explicit goal of this task force,” he said.

Zwaigenbaum said all children should be monitored for early behavioural signs of autism spectrum disorder during doctors’ visits regarding their development.

The aim is to use the recommendations as a blueprint for autism care in medical school residency programs as well as continuing education courses, Zwaigenbaum said.

The society says autism spectrum disorder affects one in 66 Canadians aged five to 17, with boys diagnosed four times more often than girls.

Susan Watts, a family support representative for Autism Canada, said the society’s position on the role of general pediatricians would allow for earlier diagnosis, reducing stress among children and parents involving a condition that can affect their daily lives in profound ways.

Watts said a patchwork of diagnostic approaches exists across the country, with Quebec licensing only psychiatrists to diagnose autism while the requirements in other jurisdictions are not as strict.

That means children who moves from one province to another after being diagnosed may have to be rediagnosed and go through the waiting process all over again, she said.

Camille Bains, The Canadian Press

Like us on Facebook and follow us on Twitter.

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Ghostriders extend win streak to eight games

The action and energy grew exponentially at Friday night’s Ghostriders game. The… Continue reading

Hands on avalanche training for FSS students

On Thursday, January 9 the day began with a golden sunrise and… Continue reading

Friday fatality at Fernie Alpine Resort

It’s the second person to die in a tree well at a ski resort in B.C. in the past week.

Two weekend rescues for Fernie SAR

Fernie Search and Rescue (SAR) was activated twice this past weekend to… Continue reading

To Australia from Fernie, helping those back home

With her home country going up in flames over 13,000 kilometres away,… Continue reading

VIDEO: Nickelback gears up for nostalgia tour

Canadian band joins Stone Temple Pilots for a summer tour that includes just one stop in Canada

Boy, 13, arrested after alleged assault involving girl at B.C. middle school

Boy alleged to have used ‘inappropriate levels of force’ to injure the girl

B.C. player becomes only second Canadian to enter Hall of Fame of Baseball

Walker received 76.6 percent of the Baseball Writers of America Association vote

PHOTOS: Heavy snowfall breaks window, causing avalanche into B.C. newsroom office

It was a chaotic start to the week for the Kitimat Northern Sentinel

Canadian law firm launches class action on behalf of Iran flight victims

Flight 752 was shot down by Iran shortly after take off

Mission Hill cellarman fired after mistakenly dumping $162K of wine down the drain

The former employee filed a grievance with the West Kelowna winery but was unsuccesful

Protesters block B.C. government building entrance to support Wet’suwet’en First Nation

A letter with four demands was delivered to the Ministry of Energy, Mines and Petroleum Resources

Hospital patient pleads guilty to dumbbell assault of nurse in Abbotsford

Neale Heath admits to assault causing bodily harm in attack last September

Most Read