This 2019 photo provided by The ALS Association shows Pat Quinn. Quinn, a co-founder of the viral ice bucket challenge, died Sunday, Nov. 22, 2020, at the age of 37. (Scott Kauffman/The ALS Association via AP)

This 2019 photo provided by The ALS Association shows Pat Quinn. Quinn, a co-founder of the viral ice bucket challenge, died Sunday, Nov. 22, 2020, at the age of 37. (Scott Kauffman/The ALS Association via AP)

Co-founder of viral ALS Ice Bucket Challenge dies at 37

Pat Quinn was diagnosed with Lou Gehrig’s disease, also known as amyotrophic lateral sclerosis, in 2013

A co-founder of the social media ALS ice bucket challenge, which has raised more than $200 million worldwide for Lou Gehrig’s disease research, died Sunday at the age of 37, according to the ALS Association.

Pat Quinn was diagnosed with Lou Gehrig’s disease, also known as amyotrophic lateral sclerosis, in 2013, a month after his 30th birthday, the organization said in a statement announcing his death.

“Pat fought ALS with positivity and bravery and inspired all around him,” the association said. “Those of us who knew him are devastated but grateful for all he did to advance the fight against ALS. … Our thoughts are with the Quinn family and all of his friends and supporters. Pat was loved by many of us within the ALS community and around the world.”

In 2014, Quinn saw the ice bucket challenge on the social media feed of professional golfer Chris Kennedy, who first dared his wife’s cousin Jeanette Senerchia to take a bucket of ice water, dump it over her head, post a video on social media and ask others to do the same or to make a donation to charity. Senerchia’s husband had ALS.

Quinn and co-founder Pete Frates, along with their teams of supporters, helped popularize the challenge. The ALS Association said Quinn “knew it was the key to raising ALS awareness,” calling it “the greatest social media campaign in history.” Frates, a former Boston College baseball player, died in December 2019 at the age of 34.

When the two picked it up, the phenomenon exploded, the organization said. Thousands of people participated in the viral trend, including celebrities, sports stars and politicians — even Donald Trump before his election and cartoon character Homer Simpson. Online videos were viewed millions of times.

“It dramatically accelerated the fight against ALS, leading to new research discoveries, expanded care for people living with ALS, and significant investment from the government in ALS research,” the organization’s statement said.

Lou Gehrig’s disease, named after the New York Yankees great who suffered from it — is also known as ALS or motor neuron disease. It is a progressive neurodegenerative disease that leads to paralysis due to the death of motor neurons in the spinal cord and brain. There is no known cure.

The organization added that Quinn continued to raise awareness and funds after popularizing the challenge. In 2015, the association honoured him, among others, as “ALS Heroes” — an award given to people living with the disease who have had a significant positive impact on the fight against it.

On the 5th anniversary of the challenge, Quinn, who was from Yonkers, New York, addressed a crowd in Boston.

“Nobody knew the Ice Bucket Challenge would become a worldwide phenomenon, but we united as one because that is what it takes to change a disease like ALS,” he said. “There are warriors all over the world unwilling to accept it as a death sentence. … We will never stop fighting together. I will not leave this Earth until I know the next person diagnosed with ALS has a real plan to live with this disease, not just die from it.”

The Associated Press

Like us on Facebook and follow us on Twitter.

Want to support local journalism? Make a donation here.

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

(File Photo)
Calling all Elkford non-profits: Bursary Program registration is now open

The bursary gives $1,000 to a local non-profit to assist with community-related projects or programs

(File Photo)
Elkford Business Walks to begin in February

Topics of discussion include changes, successes, and the impact of COVID-19 on businesses

(File Photo)
KES brings employment education to those over 55

The Encore program is targeted to adults past traditional retirement years looking for employment

Angel Flight East Kootenay was one of the three recipients of funding from the inaugural Giving Event. (Photo Contributed)
100 local women collect $10,500 for community organizations

The 100 WWC Fernie donated $3,500 to three grassroots organizations via their first Giving Event

Colleen Braconnier and her care aid, Karla McKie, outside of Rocky Mountain Village. (Soranne Floarea/ The Free Press)
‘We have such a good group here’: Local senior keeps head held high throughout pandemic

COVID-19 hasn’t stopped RMV resident, Colleen Braconnier, from remaining positive

A scene from “Canada and the Gulf War: In their own words,” a video by The Memory Project, a program of Historica Canada, is shown in this undated illustration. THE CANADIAN PRESS/HO - Historica Canada
New video marks Canada’s contributions to first Gulf War on 30th anniversary

Veterans Affairs Canada says around 4,500 Canadian military personnel served during the war

A 17-year-old snowmobiler used his backcountry survival sense in preparation to spend the night on the mountain near 100 Mile House Saturday, Jan. 16, 2021 after getting lost. (South Cariboo Search and Rescue Facebook photo)
Teen praised for backcountry survival skills after getting lost in B.C.’s Cariboo mountains

“This young man did everything right after things went wrong.”

Conservative Leader Erin O’Toole holds a press conference on Parliament Hill, in Ottawa on December 10, 2020. THE CANADIAN PRESS/Sean Kilpatrick
No place for ‘far right’ in Conservative Party, Erin O’Toole says

O’Toole condemned the Capitol attack as ‘horrifying’ and sought to distance himself and the Tories from Trumpism

Cannabis bought in British Columbia (Ashley Wadhwani/Black Press Media)
Is it time to start thinking about greener ways to package cannabis?

Packaging suppliers are still figuring eco-friendly and affordable packaging options that fit the mandates of Cannabis Regulations

A passer by walks in High Park, in Toronto, Thursday, Jan. 14, 2021. This workweek will kick off with what’s fabled to be the most depressing day of the year, during one of the darkest eras in recent history. THE CANADIAN PRESS/Chris Young
‘Blue Monday’ getting you down? Exercise may be the cure, say experts

Many jurisdictions are tightening restrictions to curb soaring COVID-19 case counts

A health-care worker prepares a dose of the Pfizer-BioNTech COVID-19 vaccine at a UHN COVID-19 vaccine clinic in Toronto on Thursday, January 7, 2021. THE CANADIAN PRESS/Nathan Denette
COVID-19: Provinces work on revised plans as Pfizer-BioNTech shipments to slow down

Anita Anand said she understands and shares Canadians’ concerns about the drug company’s decision

Tourists take photographs outside the British Columbia Legislature in Victoria, B.C., on Friday August 26, 2011. A coalition of British Columbia tourism industry groups is urging the provincial government to not pursue plans to ban domestic travel to fight the spread of COVID-19. THE CANADIAN PRESS/Darryl Dyck
B.C. travel ban will harm struggling tourism sector, says industry coalition

B.C. government would have to show evidence a travel ban is necessary

(Phil McLachlan - Capital News)
‘Targeted’ shooting in Coquitlam leaves woman in hospital

The woman suffered non-life threatening injuries in what police believe to be a targeted shooting Saturday morning

JaHyung Lee, “Canada’s oldest senior” at 110 years old, received his first dose of the COVID-19 vaccine on Thursday, Jan. 14, 2021. He lives at Amenida Seniors Community in Newton. (Submitted photo: Amenida Seniors Community)

Most Read