Shyanne Osmond to receive medical treatment in Boston

Shyanne Osmond has learned to smile through adversity.

Shyanne Osmond with the 12 doctors who reviewed her case last week. All of the doctors recommended Shyanne receive medical treatment in Boston from now on.

Shyanne Osmond has learned to smile through adversity. The eight-year-old originally from Fernie was diagnosed with AVM – arteriovenous malformation, a condition that causes an abnormal connection of blood between her veins and arteries, creating a tumour on her upper lip. She was diagnosed at just six years old, but her mother Amber said they knew about it since she was born.

“She was born with it, we could see it from birth. They kept telling us it was a birthmark – something not serious,” said Amber.

However it was something rare and serious – so serious that Shyanne now has to travel to Boston for medical help.

Last week, a team of 12 doctors reviewed Shyanne’s condition and unanimously agreed that it would be best for her to receive treatment in Boston and that Canadian doctors could no longer help her.

“Doctors – 12 of them – were discussing her situation and what the best act is to do from here, and they came back and told us that Canada can no longer help our daughter and we have to go to Boston,” said Amber.

While the details are uncertain as to how many times the family will have to travel to Boston and how often, the family is preparing for regular trips to the United States for medical assistance.

“We will not be moving to Boston. Shy cannot fly, so we will be driving back and forth from Ontario to Boston, which is a nine-hour drive. The Ontario government, as far as we know at this point – because Canadian doctors have signed off on her, Ontario will pay the medical expense of it, so that is a big bonus. They strictly do all medical costs,” said Amber.

The family will have to pay for all travel and accommodation expenses while caring for Shyanne in Boston.

According to Amber, Boston has some of the best medical support for AVM in the world, and will be able to provide Shyanne with treatment that she did not have access to in Canada, such as certain types of drugs. While she is happy about Shyanne receiving the best help available, there is a side of it that makes Amber nervous.

“I’m very happy about it but on the other hand it is very scary because I have friends with AVM and Boston won’t take them. There is a severity level and Boston is very picky on who they bring in, so the fact that they are willing to bring in Shyanne, it makes us feel like this is really bad,” said Amber. “For Canada to say we can’t do anything else for her, it’s a really scary, sick feeling. But on the other hand, we knew from day one of her diagnosis that Boston had the best of the best. So on that aspect, if she has to live with this, at least we have the best of the best help we can get.”

The Osmonds relocated from Fernie to Burlington, Ont., last year to be closer to medical experts in the Toronto area. Since then, Shyanne’s condition has worsened. She is only fed soft foods while at school for fear that hard foods could cause bleeding in her mouth, where the tumour is located. The tumour has also grown into her nose and the back of her throat.

“At school she is not allowed hard food. She is only allowed soft food – soft cookies, stuff like that because it got to the point where every time she would put something in her mouth, whether it was a cracker or anything, her mouth would just start bleeding,” said Amber.

Despite all she has been through, Amber said her daughter’s spirit and smile are as strong as ever.

“She is always happy – like always,” she said

 

Just Posted

Fires highlight need for more volunteers

Short-staffed volunteer fire departments in Elk Valley, South Country rely on mutual aid

Motorcyclist grateful to be alive, thanks fellow drivers

Over a dozen people stopped to assist Lori Hann after she tumbled off her bike on Hwy 3, Saturday

Local athletes ready for BC Summer Games

Twenty-four athletes from the Elk Valley and South Country will compete at the 2018 BC Summer Games.

GearHub staff staying positive after fire

Sporting goods store to fully reopen by end of July

UPDATE: New lead narrows the search for Serval cat

UPDATE, July 17: A new lead has narrowed the search for Aquila… Continue reading

BC Games: Day 1 comes to an end

Medals have already been handed out following one day of competition in the 2018 BC Summer Games

The Free Press editor wins awards

Editor Phil McLachlan has been recognized at the 2018 Canadian Community Newspaper Awards.

BC Wildfire update on Okanagan blazes

Watch the media briefing on the current fire situation in the Okanagan.

RCMP help to save goats from wildfire

The fast-approaching wildfire, sparked Thursday, forced the evacuation of five homes

VIDEO: Near drowning captured on popular B.C. river

Search and Rescue manager says the popular pastime of floating in the summer is inherently dangerous

Crosswalk vandalism leaves black mark for Cowichan as B.C. Games begin

Rainbow crosswalk defaced just days after being painted

Photo gallery: BC Games Day 1

A brief look at action from the 2018 BC Summer Games in the Cowichan Valley

UPDATED: Anti-pipeline campers digging in as eviction deadline expires

The City of Burnaby had ordered the Kinder Morgan pipeline protesters out for violating bylaws

Trump was taped talking of paying Playboy model: AP source

Source says former personal lawyer Michael Cohen secretly recorded discussion prior to 2016 election

Most Read