Tristin Ozard, 21, receives an infusion of medication to treat Crohn’s disease. The medication, Remicade, costs his family about $8,000 a month but is the only one that works for him. (Photo courtesy of Melissa Ozard)

B.C. mom speaks out about paying $8,000/month for Crohn’s disease drug

Melissa Ozard has had to seek out help to pay for her son’s medication

A Saanich resident is speaking out about the cost of prescription drugs for her son after reading that many Canadians are borrowing money just to afford medication.

Melissa Ozard’s 21-year-old son, Tristin, has Crohn’s disease — a disease that causes inflammation of the digestive tract and can lead to severe symptoms that can require hospitalization.

Tristin was diagnosed with the disease when he was eight years old.

After trying several medications that did not work for him and being in and out of the hospital, he was able to settle for one called Remicade.

Remicade costs about $8,000 per dose. For Tristin, it has brought him into remission.

READ MORE: B.C. residents rally for medication

The medication — which is made from living cell organisms — must be taken intravenously and takes about four hours to infuse. Tristin needs a dose of the medication every four weeks.

“He’s failed on every other drug before that, nothing else has worked,” said Melissa. “It used to be a last line of defense drug and on top of that, he needs more of it than the average person for it to work.”

She noted her son used to go to a clinic in Vancouver to receive the medication at a pediatric facility. At the time, the cost of the drug was completely covered.

Now that he has aged out of the pediatric system, he receives treatment on the Island, but the cost is no longer covered.

Ozard said PharmaCare originally offered to pay for half of his doses, leaving the family with a bill of about $4,000 a month to keep him on it.

However, PharmaCare has retracted their offer and as of August, said nothing would be covered, according to Melissa.

“They said his dose is too high … because he requires it every four weeks they won’t cover it at all,” she noted. “They found a loophole.”

READ MORE: Health committee cheers idea of national Pharmacare program, but cost an issue

Melissa and her husband put every dollar they have into Tristin’s medication and have even asked family and friends for help through a GoFundMe page.

“The issue for us is every month going to family members and saying ‘can you help us?’” she said. “It’s humiliating and horrific and we’re putting them in a horrible position.”

But they do what they need to for their son, who is enrolled in college courses and would not be able to afford the medication on his own.

On top of his Crohn’s diagnosis, Melissa said Tristin deals with mental illness and is receiving disability support from the province.

There is an option to get some coverage through a patient assistance program but she said her son would have to surrender all of his medical records to a pharmaceutical company and receive his medication at a private site instead of a hospital.

Tristin sees many doctors due to his mental illness and because of that, is not comfortable giving his medical records out.

The private sites, Melissa said, have also been known to not keep the medication he takes at the appropriate temperature necessary.

READ MORE: Federal budget fosters Pharmacare, pot-based drugs

“It’s too high a price to pay for some people,” she said. “He doesn’t want to use them, it scares him.”

However, if he goes off the medication, he would be hospitalized within weeks.

Melissa’s not sure what the solution is, but that she hopes more people learn about the cost of prescription drugs and consider how it may affect other people.

“He wants to do something with his life … This is an important issue.”

shalu.mehta@goldstreamgazette.com


Like us on Facebook and follow us on Twitter

Just Posted

City of Fernie gets curlers back on the ice

City, Fernie Curling Club to share cost of $95,000 refrigeration mats to address leaks

Fernie outdoor rink to open December 17

City approves user fees for private rental of Outdoor Community Rink

Huge snowstorm headed for Elk Valley

Mainroad issues weather event advisory with up to 25cm expected over the next 24 hours

Fernie fatbiking season in full swing

Riders hit the trails on Global Fatbike Day

Fernie man receives federal fire service medal

Kim Sedrovic is retiring from Fernie Fire Rescue after 25 years with the service

Cannabis gift ideas for this holiday season

Put the green in happy holidays, now that cannabis is legal in Canada

‘People talk about deep sadness:’ Scientists study climate change grief

Some call it environmental grief, some call it solastalgia — a word coined for a feeling of homesickness when home changes around you.

As protectors abandon Trump, investigation draws closer

Cohen was sentenced Wednesday to three years in prison for an array of crimes.

Senate delays start of sittings in new home, delaying start of broadcasts

The Senate and House of Commons are moving into temporary homes for the next decade as a result of long-planned and badly needed renovations to the Centre Block.

UK leader seeks EU lifeline after surviving confidence vote

EU leaders gather for a two-day summit, beginning Thursday, which will center on the Brexit negotiations.

French police try to catch attack suspect dead or alive

Local authorities increase death toll to three, including 13 wounded and five in serious condition

BCHL’ers blanked by Russia at World Junior A Challenge

Canada West loses battle of the unbeaten teams in the preliminary round

Second Canadian missing in China after questioning by authorities

Michael Spavor, founder of a non-profit that organizes cultural-exchange trips to North Korea, “is presently missing in China”

Warning issued as forecast calls for 20-foot waves in Tofino

Dangerous waves, strong currents and upper-shoreline flooding expected for Tofino-Ucluelet area

Most Read